Events
The Cystinosis Support Group South Africa (now called the Cystinosis Foundation South Africa), was established in 2010 by Colin and Gail Daniels.
Save The Date: Fun Run/Walk is back!
Internation Rare Disease Day with Bok Radio
https://www.bokradio.co.za/podcast/internasionale-seldsame-siektedag/
Games Night 2022 is back!
Get ready for an evening filled with fun, foodand loads of laughter! It's time to dust off those thinking hats and gather your teams... Our games night is back on! Event Details: Date: Saturday, 11 June 2022 Time: 5 - 8 PM at Emmanuel Church Venue: 24 Patou Street,...
2020 Annual Gathering – Christmas Parcels
Because of Covid-19 restrictions, and out of concern for the health of our Cystinosis patients and their families, the Cystinosis SA Board sadly decided not to hold our Annual Gathering this year which up until now has been held annually in late November and is...
Games Night 2019
Gather Your Team & Create Your Theme Team Quiz Competition, Break for Boeries, etc. Various Games Tournaments like; 30 Seconds, Rummikub, dominoes, etc… Lots of prizes to be won !!! Gather a Team of 8 to 10 and Join in the FUN . . . Join in on the fun at our Games...
Annual High Tea
ANNUAL HIGH TEA We had our annual Fundraising High Tea at Emmanuel Church on the 2 nd March, 2019. We have it as close to International Rare Disease Day as possible. The theme for Rare Disease Day was “Show Your Rare, show you care” with this is mind, we decided on...